Privacy Policy

Effective Date: August 2, 2026

Welcome to Rare Million ("Rare Million," "we," "our," or "us"). We are committed to protecting your privacy and being transparent about how we collect, use, and safeguard your information.

This Privacy Policy explains how information is collected when you visit our website, use our resources, subscribe to our communications, make purchases, submit forms, or otherwise interact with us.

1. Who We Are

Rare Million is a platform dedicated to empowering the rare disease and disability community through education, advocacy, resources, storytelling, and connection.

2. Information We Collect

Depending on how you interact with our website, we may collect the following information.

Information You Provide

You may voluntarily provide information when you:

  • Subscribe to our newsletter

  • Contact us through a form

  • Submit partnership inquiries

  • Register for events

  • Download resources

  • Make a purchase

  • Complete surveys

  • Request information

This information may include:

  • Name

  • Email address

  • Phone number (if provided)

  • Organization or company

  • Mailing address (if applicable)

  • Payment information (processed securely through third-party providers)

  • Any information you choose to include in messages or forms

Automatically Collected Information

When you visit our website, certain information may be collected automatically, including:

  • IP address

  • Browser type

  • Device information

  • Operating system

  • Pages visited

  • Time spent on pages

  • Referring website

  • General geographic location

  • Website usage statistics

This information helps us improve the website and understand how visitors use our content.

3. Cookies and Similar Technologies

Our website may use cookies and similar technologies to:

  • Improve website functionality

  • Remember visitor preferences

  • Measure website performance

  • Analyze visitor behavior

  • Enhance user experience

You can control cookies through your browser settings. Disabling cookies may affect certain website features.

4. Squarespace

Rare Million's website is hosted by Squarespace.

Squarespace may collect technical and usage information necessary to provide website hosting, analytics, security, and website functionality. Information collected by Squarespace is governed by their own privacy practices.

5. Analytics

We may use website analytics tools to better understand visitor behavior, including:

  • Page visits

  • Popular resources

  • Referral traffic

  • Website performance

  • Visitor engagement

Analytics data is generally aggregated and does not personally identify individual visitors.

6. Email Communications

If you subscribe to our newsletter or other communications, we may send:

  • Rare Million updates

  • Educational resources

  • Blog notifications

  • Event announcements

  • Community news

  • Partnership opportunities

  • Promotional information related to Rare Million

You may unsubscribe at any time using the unsubscribe link included in our emails.

7. Purchases

If products, digital downloads, event registrations, or other paid services are offered through Rare Million, payment information is processed by trusted third-party payment processors.

Rare Million does not store full credit card information.

8. How We Use Your Information

We may use your information to:

  • Provide requested resources

  • Respond to inquiries

  • Process purchases

  • Register attendees for events

  • Improve website performance

  • Send newsletters and updates

  • Develop new educational content

  • Maintain website security

  • Prevent fraud

  • Comply with legal obligations

9. Sharing Your Information

We do not sell your personal information.

We may share information with trusted third-party service providers who help operate Rare Million, including providers for:

  • Website hosting

  • Email marketing

  • Payment processing

  • Event registration

  • Analytics

  • Customer support

These providers may access information only as necessary to perform services on our behalf.

We may also disclose information if required by law or to protect our rights, safety, or property.

10. Community Stories and Submitted Content

Rare Million celebrates the voices of the rare disease and disability community.

If you voluntarily submit a story, testimonial, photo, quote, or other content for publication, you understand that the information you choose to share may become publicly available on our website, social media channels, newsletters, or other promotional materials, subject to any permissions or agreements provided at the time of submission.

11. Health Information

Rare Million provides educational information and community resources.

Any health-related information you voluntarily share through contact forms, emails, surveys, or community submissions is provided at your discretion. Unless specifically stated, Rare Million is not a healthcare provider and does not collect or maintain protected health information (PHI) under HIPAA.

Please avoid submitting sensitive medical information unless it is necessary for the purpose of your inquiry.

12. Data Security

We use reasonable administrative, technical, and organizational safeguards to protect your information.

However, no method of transmitting information over the internet or storing electronic information is completely secure. We cannot guarantee absolute security.

13. Data Retention

We retain personal information only as long as necessary to:

  • Provide requested services

  • Meet legal obligations

  • Resolve disputes

  • Improve our services

  • Maintain business records

14. Your Privacy Rights

Depending on where you live, you may have rights regarding your personal information, including the right to:

  • Request access to your information

  • Correct inaccurate information

  • Request deletion of your information

  • Withdraw consent where applicable

  • Object to certain processing

  • Request a copy of your information

To exercise these rights, please contact us using the information below.

15. Children's Privacy

Rare Million is not directed toward children under the age of 13.

We do not knowingly collect personal information from children under 13 without appropriate parental consent.

If you believe a child has provided personal information, please contact us so we can remove it.

16. Third-Party Links

Our website may include links to third-party websites, nonprofit organizations, social media platforms, sponsors, or other external resources.

We are not responsible for the privacy practices or content of those websites.

17. Changes to This Privacy Policy

We may update this Privacy Policy periodically.

The updated version will be posted on this page with a revised Effective Date. Continued use of the website after changes are posted constitutes acceptance of the revised Privacy Policy.

18. Contact Us

If you have questions about this Privacy Policy or our privacy practices, please contact us:

Rare Million

Website: https://www.raremillion.com

Email: Sarah@RareMillion.com

We are committed to respecting your privacy and responding to reasonable requests regarding your personal information.