Rare Disease Community Spotlight

Share what makes you shine!

Every rare disease journey is unique, and every story has the power to help someone else feel less alone.

Whether you've found a helpful accessibility tip, discovered a life-changing resource, overcome a challenge, or simply want to share your experience, we'd love to feature you as part of the Rare Million community.

You choose what you're comfortable sharing. We celebrate authenticity, not perfection.


Tell us a little about yourself (2–4 sentences).
Include:

  • Your diagnosis (if you'd like to share)

  • A little about who you are

  • A fun fact about yourself

Share Something with the Community
Choose one (or both):

  • A tip, life hack, or piece of advice you'd like to share with the community

  • A nonprofit, organization, or resource you'd like to spotlight (and why)

Photo (Optional)

  • Upload 1-4 favorite photos you'd like us to use with your spotlight.

Permission
By filling out this form:

  • I give Rare Million permission to share your responses and submitted photo on its website, social media, and other community platforms.

  • I confirm this story is my own.

  • I give Rare Million permission to publish my story and submitted photos in the places listed above.

  • I understand I can request updates or removal of my story in the future by contacting Rare Million at Sarah@RareMillion.com.

  • I understand Rare Million may lightly edit my submission for grammar, readability, and formatting while preserving my voice.